Thursday, August 31, 2017

DAILY NANCY UPDATE #122

Greetings. 

This is the one hundred and twenty-second in a series of DAILY NANCY UPDATES I have posted-- now celebrating the fact that even though her post bone marrow transplant and brain seizure recovery continues... the amazing Nancy Neufeld Callaway is in remission and we have kicked her leukemia on its ass. 

If you'd like to be automatically notified of updates to this blog-- just enter your email address in the window on the right beneath Nancy's picture, click SUBMIT, and follow the prompts!

THURSDAY REPORT

Yes, I know these blogposts have become less and less frequent. 
But in this particular case, no news is good news.


It's been 86 days since Nancy's bone marrow transplant and 66 days since the unexpected brain seizure she suffered as a major complication during her recovery.

Today, the Sunshiny Superwarrior Goddess took her twice weekly visit back to City of Hope for outpatient blood testing and a consultation with Dr. Forman. And here's the headlines:

1. Her third BCR-ABL blood test has once again revealed no traces of leukemia in her body.

2. And because the rest of her numbers are strong and her immune system seems to be rebuilding itself quite nicely... Dr. Forman has decided to reduce her outpatient clinic visits to only one a week. What's more, he doesn't want to see us again at all until September 11th-- at which point, she'll be only two days away from the 100 day post transplant mark.

3. Finally, since the latest results from last Monday's EEG brain scan show no signs of continuing mini-seizures and significant healing since the viral encephalitis and grand mal seizure she suffered in June... he is removing one more of the three anti-seizure meds she's been on. That means she's now only taking one-- which should also be dropped very soon.

When Nancy returns to COH on the 11th, she'll be undergoing some comprehensive cognitive testing so we can hopefully get a little more insight into her short term memory loss and intermittent confusion issues-- which, although vastly improved, have continued to plague her a bit.

Again, her entire team of physicians insist those issues are temporary and will eventually resolve themselves. So until then, we're all just doing the best we can to manage the daily frustrations that come along with them.

Many of you have sweetly begun to reach out to Nancy directly about scheduling visits. We appreciate your patience in that process-- setting dates can be a bit daunting when your memory doesn't always cooperate. But she's a little bit sharper every day-- and sooner or later, she'll share that mile-wide smile with each of you.

Meanwhile, please know that our entire family is continually touched by all the kindness and support you've offered us.

WE LOVE NANCY, and... 

ALL IS WELL!

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